NIAMS Publication Ordering System
Epidermólisis Ampollosa: Esenciales: hojas informativas de fácil lectura
Last published 11/2014
Tenga en cuenta que la información en línea puede estar más actualizada que la información impresa.
Please note that online information may be more recently updated than printed materials.
Esta es una hoja informativa de fácil lectura acerca de los problemas de la epidermólisis ampollosa. Describe brevemente en qué consiste la enfermedad, las causas, el diagnóstico y el tratamiento. También incluye información acerca de las investigaciones que se están llevando a cabo sobre la epidermólisis ampollosa patrocinadas por el Instituto Nacional de Artritis y Enfermedades Musculoesqueléticas y de la Piel de los Institutos Nacionales de la Salud y otros componentes del Departamento de Salud y Servicios Humanos.
This fact sheet is for people who have epidermolysis bullosa (ep-ee-der-MOL-eh-sis bull-O-sa, often called "EB"), parents and caregivers of children with EB, and others interested in learning more about the disease. The fact sheet describes the disease and its symptoms and contains information about diagnosis and treatment, as well as current research efforts supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) and other components of the Department of Health and Human Services National Institutes of Health (NIH). It also discusses issues such as skin care and quality of life for people with EB. If you have questions after reading this fact sheet, you may wish to discuss them with your doctor or a dermatologist (a specialist in treating skin conditions).
Length: 4 pp.
- General public
- For medical & health professionals to share with patients
Quantity that can be ordered: up to 1 copy
This publication is in the public domain. It can be reproduced.
Size: 8 1/2 x 11
To order by phone or inquire about bulk orders for health forums or fairs, please contact the NIAMS Information Clearinghouse at (877) 22-NIAMS (226-4267). The TTY (Telecommunications Device for the Deaf) number is (301) 565-2966.